When a sibling dies

rear view of a boy sitting on grassland
It has been said that “death ends a life, it does not end a relationship.

This statement is perhaps especially true when a sibling dies in childhood, adolescence or early adulthood.  An untimely death whose ripple effects may continue long after the farewell at the funeral or graveside.

Sibling relationships have attributes in common with all interpersonal relationships.  They also have specific unique features that reflect a special bond.

It has been suggested that siblings are likely to spend more of their lifespans with each other than with any other family member.

Siblings may use each other as significant influences, ‘benchmarks’ in the development of self- identity and understanding of the world.  Siblings play a crucial role in the development of identity.  Their relationships help define one another.

Consequently when a sibling dies, the surviving child or adolescent loses many things…a playmate, a confidante, a role model, and a friend…even someone to argue with and someone with whom they can  ‘gang up’ against parents.

Perhaps someone to grow old with, look after aging parents together.  They lose a shared history and future, a feeling of connectedness and shared activities.

The identity of siblings is frequently so intricately connected with the death of a sibling it may feel like the death of a part of themselves.  The grief of young people may at times be minimised, overlooked or misinterpreted.

The familiar pattern of their lives as for adults is forever changed.  They may feel inexpressively lonely and lost.  They may also feel regret and guilt, as adults sometimes do, wishing they had done things differently.

Life views may be challenged, e.g. that only old people die, that adults can always make things better and keep everyone safe.  It can be very unsettling for young folk and they, like adults, need time and help to relearn their new world.

How each child or adolescent responds to the death of a sibling will be influenced by a range of factors, including their age, their gender, previous experience of loss, the reactions of adults around them, individual personality, the nature of the death and the nature of the relationship they experienced with the child who has died.

It is difficult, in the early months, to feel connected to someone who is no longer physically present.  There may be for older children and adolescents, an expressed fear of ‘forgetting’.  The permanence of a ‘heart connection’ seems less than a physical presence, a person that can be touched and loved, played with and kissed.  Children and adolescents, like adults, may like to surround themselves with photos or mementos to trigger and reinforce the strength of memories.

“Eventually and gradually, there is a growing knowledge that those who have died are, always have been, and always will be a part of who we are, that no-one can take from us what we carry within.” (Dianne McKissock)

In years past, it was thought that we need to ‘leave things/people behind’, and ‘get on with our lives’.  Nothing could be further from the natural inclinations of most bereaved people, for whom ‘leaving behind’ is a most painful concept.

Current understandings about grief and the task of readjusting to a world forever changed, place more emphasis on the natural human tendency to want to stay connected in some way, to take those who have died with us into our tomorrows, albeit in a different way.

It is now more widely accepted that maintaining an ongoing connection and relationship with the person who is died is often an integral part of a healthy and successful readjustment.

For years following the death, many siblings may report that they continue to actively miss their deceased brother or sister and often experience renewed and intense grief on occasions that would be considered significant in their lives together (e.g. graduation, births, weddings, retirement, special birthdays).  Surviving siblings continually renegotiate their ‘relationship’ with their deceased sibling as they navigate successive developmental and life stages.

The whole family is heartbroken and disrupted by the death of a child.  The family, as individuals and as a unit, must restructure and readjust.  How parents model managing their grief will influence how surviving children manage.

Open communication, a sense of togetherness and parental support is crucial as is the help received from extended family and friends.

The impact of a child’s death is pervasive.  As with adults, not all children and adolescents react in the same way.

Some points to consider:

  • Children are less likely to be able to describe their emotions and/or reactions.  They show their hurt in other ways, e.g. crying, withdrawing, seeking attention, misbehaving, complaining of aches and pains, picking fights, arguing, having nightmares.
  • Age and development significantly influence a young person’s ability to understand death.  Adults with all their life experience and complete development will frequently feel overwhelmed by the enormity and finality of death.  It, therefore, can become puzzling and confusing for children.
  • A sense of normalcy is lost.  Bereaved children may feel very different from their peers:  the family may feel different.
  • At times children may feel that the child who has died was the preferred or favourite child, mainly as they observe parents become preoccupied or all consumed by their grief.
  • Sometimes the child who dies is idealised, their admirable qualities emphasised and surviving siblings may feel inadequate in comparison.
  • Often the rest of the world asks how the parents are doing, not recognising or validating the grief of surviving children.  Siblings work through their pain in bits and pieces.  Play, school and continuing normal activities are powerful tools that help children and adolescents manage by moderating their grief, allowing them a chance ‘to be normal’.
  • Children and adolescents will reprocess the death and its impact over time as they mature and develop.
  • Some siblings are not verbal in expressing their thoughts and feelings.  They may choose not to talk much about their sibling who has died.  Sometimes, protectively, they may choose not to talk to parents and may turn to others instead.
  • Life for adults, ‘sibling’ memories may be triggered by places, objects and songs.  It is important to prepare siblings for these experiences and let them know this is normal.  It may even be useful to share your own parental triggers.
  • Many children report thinking about their sibling at special family times.  It may be helpful to anticipate this beforehand and talk about these important life events and the absence everyone feels.
  • Children may be encouraged to carry their sibling’s photograph or other small link that brings a touch of comfort.
  • Many children continue to talk to their sibling quietly internally.
  • Some prefer to start journals.

There are no right or wrong, “set’ ways to foster a sense of connectedness.  Rather an atmosphere of tolerance, encouragement and open communication are most likely to enable bereaved siblings to find personal and special ways to stay connected to their brother or sisters.

It is important to note that as this is a process that changes and evolves over a lifetime as do the needs of the grieving child.

A child who dies remains an integral part of an individual’s and a family’s past and present.  The bond in future will of course be different with change and the challenge for survivors is how to be and act in a world without those we love by our side in the physical.

grayscale photo of baby feet with father and mother hands in heart signs
Thanks to my good friend and colleague Vera Russell.

What it means to “hold space” for people and eight tips on how to do it well

I recently came across this excellent article written by Heather Plett, and she has kindly given me permission to reprint here as she has written it.  I think it speaks to many of us who have had to walk the path of grief and to many of us who support others in their journey.

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“When my mom was dying, my siblings and I gathered to be with her in her final days. None of us knew anything about supporting someone in her transition out of this life into the next, but we were pretty sure we wanted to keep her at home, so we did.

While we supported mom, we were, in turn, supported by a gifted palliative care nurse, Ann, who came every few days to care for mom and to talk to us about what we could expect in the coming days. She taught us how to inject Mom with morphine when she became restless, she offered to do the difficult tasks (like giving Mom a bath), and she gave us only as much information as we needed about what to do with Mom’s body after her spirit had passed.

“Take your time,” she said. “You don’t need to call the funeral home until you’re ready. Gather the people who will want to say their final farewells. Sit with your mom as long as you need to. When you’re ready, call and they will come to pick her up.”

Ann gave us an incredible gift in those final days. Though it was an excruciating week, we knew that we were being held by someone who was only a phone call away.

In the two years since then, I’ve often thought about Ann and the important role she played in our lives. She was much more than what can fit in the title of “palliative care nurse”. She was facilitator, coach, and guide. By offering gentle, nonjudgmental support and guidance, she helped us walk one of the most difficult journeys of our lives.

The work that Ann did can be defined by a term that’s become common in some of the circles in which I work. She was holding space for us.

What does it mean to hold space for someone else? It means that we are willing to walk alongside another person in whatever journey they’re on without judging them, making them feel inadequate, trying to fix them, or trying to impact the outcome. When we hold space for other people, we open our hearts, offer unconditional support, and let go of judgement and control.

Sometimes we find ourselves holding space for people while they hold space for others. In our situation, for example, Ann was holding space for us while we held space for Mom. Though I know nothing about her support system, I suspect that there are others holding space for Ann as she does this challenging and meaningful work. It’s virtually impossible to be a strong space holder unless we have others who will hold space for us. Even the strongest leaders, coaches, nurses, etc., need to know that there are some people with whom they can be vulnerable and weak without fear of being judged.

In my own roles as teacher, facilitator, coach, mother, wife, and friend, etc., I do my best to hold space for other people in the same way that Ann modeled it for me and my siblings. It’s not always easy, because I have a very human tendency to want to fix people, give them advice, or judge them for not being further along the path than they are, but I keep trying because I know that it’s important. At the same time, there are people in my life that I trust to hold space for me.

To truly support people in their own growth, transformation, grief, etc., we can’t do it by taking their power away (ie. trying to fix their problems), shaming them (ie. implying that they should know more than they do), or overwhelming them (ie. giving them more information than they’re ready for). We have to be prepared to step to the side so that they can make their own choices, offer them unconditional love and support, give gentle guidance when it’s needed, and make them feel safe even when they make mistakes.

Holding space is not something that’s exclusive to facilitators, coaches, or palliative care nurses. It is something that ALL of us can do for each other – for our partners, children, friends, neighbours, and even strangers who strike up conversations as we’re riding the bus to work.

Here are the lessons I’ve learned from Ann and others who have held space for me.

  1. Give people permission to trust their own intuition and wisdom. When we were supporting Mom in her final days, we had no experience to rely on, and yet, intuitively, we knew what was needed. We knew how to carry her shrinking body to the washroom, we knew how to sit and sing hymns to her, and we knew how to love her. We even knew when it was time to inject the medication that would help ease her pain. In a very gentle way, Ann let us know that we didn’t need to do things according to some arbitrary health care protocol – we simply needed to trust our intuition and accumulated wisdom from the many years we’d loved Mom.
  2. Give people only as much information as they can handle. Ann gave us some simple instructions and left us with a few handouts, but did not overwhelm us with far more than we could process in our tender time of grief. Too much information would have left us feeling incompetent and unworthy.
  3. Don’t take their power away. When we take decision-making power out of people’s hands, we leave them feeling useless and incompetent. There may be some times when we need to step in and make hard decisions for other people (ie. when they’re dealing with an addiction and an intervention feels like the only thing that will save them), but in almost every other case, people need the autonomy to make their own choices (even our children). Ann knew that we needed to feel empowered in making decisions on our Mom’s behalf, and so she offered support but never tried to direct or control us.
  4. Keep your own ego out of it. This is a big one. We all get caught in that trap now and then – when we begin to believe that someone else’s success is dependent on our intervention, or when we think that their failure reflects poorly on us, or when we’re convinced that whatever emotions they choose to unload on us are about us instead of them. It’s a trap I’ve occasionally found myself slipping into when I teach. I can become more concerned about my own success (Do the students like me? Do their marks reflect on my ability to teach? Etc.) than about the success of my students. But that doesn’t serve anyone – not even me. To truly support their growth, I need to keep my ego out of it and create the space where they have the opportunity to grow and learn.
  5. Make them feel safe enough to fail. When people are learning, growing, or going through grief or transition, they are bound to make some mistakes along the way. When we, as their space holders, withhold judgement and shame, we offer them the opportunity to reach inside themselves to find the courage to take risks and the resilience to keep going even when they fail. When we let them know that failure is simply a part of the journey and not the end of the world, they’ll spend less time beating themselves up for it and more time learning from their mistakes.
  6. Give guidance and help with humility and thoughtfulness. A wise space holder knows when to withhold guidance (ie. when it makes a person feel foolish and inadequate) and when to offer it gently (ie. when a person asks for it or is too lost to know what to ask for). Though Ann did not take our power or autonomy away, she did offer to come and give Mom baths and do some of the more challenging parts of caregiving. This was a relief to us, as we had no practice at it and didn’t want to place Mom in a position that might make her feel shame (ie. having her children see her naked). This is a careful dance that we all must do when we hold space for other people. Recognizing the areas in which they feel most vulnerable and incapable and offering the right kind of help without shaming them takes practice and humility.
  7. Create a container for complex emotions, fear, trauma, etc. When people feel that they are held in a deeper way than they are used to, they feel safe enough to allow complex emotions to surface that might normally remain hidden. Someone who is practiced at holding space knows that this can happen and will be prepared to hold it in a gentle, supportive, and nonjudgmental way. In The Circle Way, we talk about “holding the rim” for people. The circle becomes the space where people feel safe enough to fall apart without fearing that this will leave them permanently broken or that they will be shamed by others in the room. Someone is always there to offer strength and courage. This is not easy work, and it is work that I continue to learn about as I host increasingly more challenging conversations. We cannot do it if we are overly emotional ourselves, if we haven’t done the hard work of looking into our own shadow, or if we don’t trust the people we are holding space for. In Ann’s case, she did this by showing up with tenderness, compassion, and confidence. If she had shown up in a way that didn’t offer us assurance that she could handle difficult situations or that she was afraid of death, we wouldn’t have been able to trust her as we did.
  8. Allow them to make different decisions and to have different experiences than you would. Holding space is about respecting each person’s differences and recognizing that those differences may lead to them making choices that we would not make. Sometimes, for example, they make choices based on cultural norms that we can’t understand from within our own experience. When we hold space, we release control and we honour differences. This showed up, for example, in the way that Ann supported us in making decisions about what to do with Mom’s body after her spirit was no longer housed there. If there had been some ritual that we felt we needed to conduct before releasing her body, we were free to do that in the privacy of Mom’s home.

Holding space is not something that we can master overnight, or that can be adequately addressed in a list of tips like the ones I’ve just given. It’s a complex practice that evolves as we practice it, and it is unique to each person and each situation.

It is my intention to be a life-long learning in what it means to hold space for other people, so if you have experience that’s different than mine and want to add anything to this post, please add that in the comments or send me a message.”

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If you would like to know more about Heather,  you may find her at https://heatherplett.com/about-2/

Roberta Grimes books…

Roberta Grimes is a lady who has spent decades studying the afterlife and the massive amount of evidence that we now have for the continuation of life after death which has been at our disposal over the past 200 years.   She shares what she has learnt in two of her books which I have recently read.

The books are the Fun of Dying (2010) and the Fun of Staying in Touch (2014).  These two books form part of a trilogy that Roberta has written that explains in simple easy to understand fun-of-dyingterminology just what happens when we transition and about God, reality, and the meaning and purpose of life on earth.

 

 

 

 

In the Fun of Staying in Touch, she outlines the many ways that one can communicate with those who have transitioned and it also includes a study guide and a very comprehensive list of resources.

 

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Roberta is a business attorney who has written quite a few books including a book called Liberating Jesus.

Her books are easy to read.  If you have ever wondered what happens after death and how you may live today with your eternal life in mind, these are two great introductory books.

The following is taken from her blog, “Roberta has been a guest on hundreds of radio programs. She hosts her own live show called Seek Reality on the BBM Global Network, and podcasts of previous Seek Reality shows dating back to 2013 are available for free on WebTalkRadio.net and on iTunes, where her archive has had hundreds of thousands of downloads. Roberta’s shows and podcasts feature interesting and sometimes controversial topics and guests. Their purpose is to help you develop an understanding of what actually is going on.”

Her blog is at http://robertagrimes.com

Most of us believe there is something more to our four score years and ten. But what?  If you have ever wondered, what is next, then you may find yourself on an exciting journey with Roberta.

If you wish to find out a little more without resorting to the academic treatises, then check this lady’s books out.   I purchased my copies from The Book Depository as I have no local bookstore, but I am sure they would be readily available at your local bookstore or library.

 

Little steps…

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As I sit here on the fourth anniversary of your death my darling little girl, I look dispassionately upon myself, the shattered prism of me.  I, as if occupying an outer body person look at this stranger who on the one hand can sit and write so unemotionally yet who also contains a part body that can blink to enable it to see the person reduced to tears bereft of all emotion but utter desolation.   Blink again to see the strong person many others perceive, flash again to see the scared and frightened rabbit person peering in fear of the world from her burrow and I wonder will me ever come back again and do I even know who I am anymore.  Each part of the prism itself shattered in sharp shards upon the floor of earth.

Four years ago almost to the hour as I held your beautiful self, trapped in a  frail body ravaged by twelve months of chemotherapy and radiation and unspeakable tortures and pain, I did not know how my world would be forever changed and distorted beyond measure.   I am, at this time outwardly showing a small window of my pain and inwardly screaming the primal scream of the mother who realises that she will no longer see you again as her vibrant, loving child.    A mother utterly defeated by an enemy she cannot fight.   A force that no matter how much love there is, it cannot stop the final closing of your eyes, the shallow breaths, and the eventual barely perceptible release of your body from its earthly shell held so tightly in a frightened despairing mother’s arms releasing you to what and where she does not know.  The final act of torture that began in her mind a few hours ago when the doctors declare their inability to do any more for you, for us.

A part of me can look back now with pride, watching our respective strengths in the face of the inevitable.  Watching you tidying up your fifteen short years upon this earth writing thank you letters to all the staff thanking them for trying so hard to save you.   A letter for me to open later.   I watch you and I struggling to understand what is happening but at the same instant knowing that it is merely a matter of time before we begin that final journey that we will do together as mother and daughter.   I cannot go back to some of those hours locked behind steel doors that no one but you and I can see today, the trauma now held in the grip of my inner recesses of my mind.  I think of the horror I see in your sweet face when I ask you if there is anything you wish me to give your friends and your reply a maturity beyond your years, “Oh no, mummy, people judge their worth by what they are given.”  On the one hand, I hear that natural expression of yours “mummy” and the part of you that has never changed my little girl, and on the contrary, I listen to the words so wise that trip from your lips.  I see you write down for your professor to read how “sorry you are that you cannot give him the gift of saving your life”.  I take an opportunity to go out of your room, to gather my strength only to see the devastating effect your impending death has on those who have been so much a presence in our lives.  The professor you adore, in his private world and tears, the doctors, the nurses all so evidently aware that the curtain of earthly life is soon to close.  I can no longer dwell upon that last hours scene for the risk that I will be propelled into a state in which others will take control of me. 

I am alone now, more than I ever have been in my life physically, mentally and emotionally and even now cannot let myself go for fear that I will lose me altogether and begin the walk of the living dead.   I turn on the “coping me” that part of me I use, to get through many days and nights and that I now use to complete this writing.  I will shut tight again the doors that hold the trauma of that time, again close them to remain known only to myself and you.  I live in fear that I will slip again into that state of catatonia that rendered me incapable that first month after you died.  That state that stopped me from being able to bury you for many, many weeks.   That state that I  snapped out of by rude, unkind people demanding to know when I was “going to lay you to rest.”  The said and unsaid pressure for me to “get on with life”, the cruel taunt that life goes on without you.

Four years later I can say that I have plumbed the depths of utter desolation and flirted with my death.   Pills piled in front of me, not once but several times I try, but I am not to have that natural release despite my strenuous attempts.  No one knows how many times I have tried and not succeeded how frustrated and painful life is for me.  How many times I have lain for days in pill-induced sleep another attempt thwarted by forces unknown for I am sure each time I have taken enough to send me on my way.

You asked me once, a long time ago what I thought happens to us when we die.  The depth of my reply shows how little I had thought about it.  I had not thought of it at all really, except as I said,” I would like to think that there are more than three score years and ten.”  I came from a dysfunctional family who warred over religion.  I, in turn, looked the other way when it came to religion and spirituality and lumped that part of other people’s life into a box.   I was not interested in pursuing it until I had to, if ever had to, being so sure in my thinking that it was a moot point.  Mindful only that I had you so late in life that I had to make sure only that you be prepared to live without me.

Sometime in the past four years and I can honestly say I do not know when my mother’s instincts again kicked in.    I became desperate to find out where you were, were you safe and was there something I was not doing that was thwarting your attempts to keep your end of the bargain that we had made.  The promise that we had made to each other on that last day that “if there were a way to communicate we would find it.”  Instinctively we must have known that there was more ‘to life’ than this to make this pact with each other.  I see that now so clearly.  I see also so clearly how my  lack of knowledge and grief was holding up our path.

I remember that it was an aha moment at the time, but when that moment happened remains a mystery of the past four years.  One operates on automatic, in a somewhat fog of daily living as I am sure you the reader can imagine that envelops the parent who has to bury their child.  A state that makes them a walking, seemingly okay shell.

But yes, it was an aha moment that there is a difference between religion and spirituality.  I had spent my time since you left reading, studying all I could, about death, life,  the religions of the world, the worlds of spirit, the world not known to me at the time you left and it was a significant point at which I changed in my grieving.   No longer was I wallowing in my pain, rocking at the mercy of emotions.  Pulling myself each time from the depths of what I cannot describe in words but which another parent who buries their child would know. Slowly no longer did I feel helpless without hope. 

I have learnt that the religions of the world to help in spiritual matters are weak support for any but those who do not seek proof, those who are content, to follow without question.  I know I have tested their representatives and words to the extreme as indeed I have tested many “schools of thought”.

I have learnt that there is no easy way for a grieving mother to have answered that very, very basic need of hers to know where her child was in a definitive manner.   I also know it should not be like this.   In general terms, death is to be feared,  seen as final, just as I thought four years ago when I held you, my daughter in my arms.   I very nearly lost my mind and close to losing my life because I did not have what every person should know without question that death is not the end.

Our common usage words departed, deceased, and dead have a common connotation of The End. We really should be the using the most accurate terms such as graduate, transition, and cross over. 

I have found that there is life after bodily death.  I have proved beyond doubt that I can communicate with my beautiful daughter and that there are ways that other parents and families can do the same with their beloved children.    I have found solid, irrefutable evidence that we do live after death that we do not lay in some cold place waiting to be “called.”  I have learned that there is proof out there and available if you need it.  I have also learned how hard it is to find for someone in my position.   I believe it should not be so, so hard, so very hard for grieving people to find some peace.   I think it should be common knowledge and accepted that there is more that we can do between the worlds.

I believe that if you and I my darling can show just one other person the path then our pain and trauma will have been worth it.  To give a gift of peace to another mother or father that yes your child does live on and “is with you more than you can ever realise and this is how you can communicate” would be a gift worth giving indeed. 

Grief -an old guys perspective

This piece of well-written wisdom is circulating the internet.  The author long lost to us, as so often sadly happens after an article becomes public.  It is a wise way to help reframe some of our thoughts about the challenges that face us today.  I would like to share it with you, for those who may not have seen it.